This Resources Main Page is our portal to find the Down syndrome information you’re looking for. Consider this page Cinderella’s Castle at the Magic Kingdom…all information centers on this page and takes you to all other information.

Here you can click to find out about the new NOW waiver or latest information on cardiac catheterizations. Look for IEP information or find out how to contact your legislators. Click on any of the pages to the left and begin your journey. If you have information to add to any of these pages, please contact us.

Social Security Disability Help blog

Additional Resources for Down Syndrome

Information And Assistance

Administration on Developmental Disabilities
Administration for Children and Families
U.S. Department of Health and Human Services
Mail Stop: HHH 300F
370 L’Enfant Promenade S.W.
<span”>Washington, DC 20447
(202) 690-6590


American Speech, Language and Hearing

10801 Rockville Pike
Rockville, MD 20852
1-800-638-8255 or 1-888-321-ASHA

Down Syndrome Education International 
6 Underley Business Centre
Kirkby Lonsdale


Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
(412) 341-1515 or 1-888-300-6710

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 428-7100
1-888-MODIMES (1-888-663-4637)

National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(770) 604-9500

National Down Syndrome Society
666 Broadway
New York, NY 10012
(212) 460-9330

National Information Center for Children
and Youth with Disabilities

P.O. Box 1492
Washington, DC 20013-1492
(202) 884-8200

Mid-Atlantic Regional
Human Genetics Network (MARHGN)
(genetic counseling)
Curtis Coughlin II, MS, MARHGN Coordinator
MARGHN c/o Christiana Health Care Services
Genetics Room 1988
4755 Ogletown-Stanton Road
P.O. Box 6001
Newark, DE 19718
(302) 733-6732

National Society of Genetic Counselors
233 Canterbury Drive
Wallingford, PA 19086-6617
(610) 872-7608

The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910
(301) 565-3842
(301) 565-3843 – Fax