Resources

This Resources Main Page is our portal to find the Down syndrome information you’re looking for. Consider this page Cinderella’s Castle at the Magic Kingdom…all information centers on this page and takes you to all other information.

Here you can click to find out about the new NOW waiver or latest information on cardiac catheterizations. Look for IEP information or find out how to contact your legislators. Click on any of the pages to the left and begin your journey. If you have information to add to any of these pages, please contact us.

Social Security Disability Help blog

Additional Resources for Down Syndrome

Information And Assistance

Administration on Developmental Disabilities
Administration for Children and Families
U.S. Department of Health and Human Services
Mail Stop: HHH 300F
370 L’Enfant Promenade S.W.
<span”>Washington, DC 20447
(202) 690-6590

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American Speech, Language and Hearing

Association
10801 Rockville Pike
Rockville, MD 20852
1-800-638-8255 or 1-888-321-ASHA
http://www.asha.org/

Down Syndrome Education International 
6 Underley Business Centre
Kirkby Lonsdale
Cumbria
LA6 2DY
UK

http://www.dseinternational.org/en-us/

 

Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
(412) 341-1515 or 1-888-300-6710
http://www.ldanatl.org/

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 428-7100
1-888-MODIMES (1-888-663-4637)
http://www.modimes.org/

National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
1-800-232-6372
(770) 604-9500
http://www.ndsccenter.org/

National Down Syndrome Society
666 Broadway
New York, NY 10012
1-800-221-4602
(212) 460-9330
http://www.ndss.org/

National Information Center for Children
and Youth with Disabilities

P.O. Box 1492
Washington, DC 20013-1492
1-800-695-0285
(202) 884-8200
http://www.nichcy.org/

Mid-Atlantic Regional
Human Genetics Network (MARHGN)
(genetic counseling)
Curtis Coughlin II, MS, MARHGN Coordinator
MARGHN c/o Christiana Health Care Services
Genetics Room 1988
4755 Ogletown-Stanton Road
P.O. Box 6001
Newark, DE 19718
(302) 733-6732
http://www.pitt.edu/~marhgn/

National Society of Genetic Counselors
233 Canterbury Drive
Wallingford, PA 19086-6617
(610) 872-7608
http://www.nsgc.org/

The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910
(301) 565-3842
(301) 565-3843 – Fax