board of directors

Torrie Farley - President

Torrie resides in St. Bernard Parish with her husband, Patrick, her son Nathan (6), and her daughter, Maddie (3). She is a Program Manager for Tulane Univeristy’s Office of Advancement for Annual & Leadership Giving. She received a bachelor’s degree from Southeastern Louisiana University in General Studies and a Master of Liberal Arts at Tulane’s School of Professional Advancement. She is a volunteer with the Down Syndrome Diagnosis Network (DSDN) where she will attend her third DSDN Rockin’ Mom Retreat in Las Vegas this September. 

Soon after Torrie gave birth to her daughter, Maddie, in March 2021 she and her husband learned that Maddie had Trisomy 21. Without any guidance, they were sent home with their new baby girl to start a journey they were not prepared for. With time and help from family and online communities, Torrie was able to navigate the new journey she was now on with her daughter. In the process, she developed a passion in advocating for Maddie and other individuals with Down syndrome. 
 
Torrie joined the board of DSAGNO in April 2023 after attending her first Buddy Walk in October 2022. She is excited to bring her expertise to DSAGNO as the new President. She plans to help families and the community learn more about Down syndrome and provide the proper resources to local hospitals and medical offices. 
 

Shawn McBride - Vice president

Shawn was born and raised in Wisconsin and is the oldest of six children.  After completing her Master’s Degree in Communication Disorders (Speech, Language and Hearing) at the University of Wisconsin-Stevens Point, she started her career in San Antonio, Texas. She then moved to New Jersey and later married John McBride, a school psychologist and Director of Special Services in a large school system. Shawn continued as a Speech and Language Clinician and  expanded her education and state certifications in advanced areas.  She then worked as a Learning Consultant, Director of Special Services and eventually, an elementary school principal.

After nearly 14 years in education (which was dearly loved), Shawn and her husband accepted new positions and took totally different career paths in the food industry.   They moved to New Orleans in 1984 and began working with the renowned  Chef Paul Prudhomme in all of his endeavors and companies, mainly with Magic Seasoning Blends with Shawn as CEO/President and John as VP of Sales and Marketing. Their educational background served them well throughout the businesses on many different occasions when there were employees who were having some challenges in the job performance—often due to undetected learning problems.

Presently, Shawn serves on several different boards and does some independent consulting in both education and the food industry.   Her love of education has never diminished and she has stayed Involved through the years in several different ways.  She joined the DSAGNO Board in New Orleans (2023) and although she does not have a child with Ds, her love continues to grow for children and adults with special needs.  Shawn and her husband are committed to their needs and work as advocates for our DSAGNO members and many others throughout the country.

Patricia Ehrle - Secretary

Pat Ehrle was introduced to an amazing community of kind and caring friends who shared a common goal with her over forty-five years ago when her son, Craig Blackburn, was born with Down syndrome. Pat became an advocate for Craig and all others with Special Needs who needed a voice to communicate to others how truly able they are, each in their own way. Everyone has something to contribute.

Pat retired at the end of 2016, and her goal was to work with individuals with Special Needs, young children, and the senior population.

Pat is currently the Secretary for the Down Syndrome Association of Greater New Orleans. Since the inception of DSAGNO in the mid 80’s, Pat has held many positions on the Board, as well as had her husband, Ken and son, Craig. DSAGNO is a community of other families
who walk the same path as Pat, Ken, and Craig. There is great comfort in sharing ideas and learning from others who have family members with Down syndrome. DSAGNO is family.

Pat is on the Board of the Jefferson Parish Human Services Authority (JPHSA). Pat volunteers at East Jefferson General Hospital (EJGH) in
patient transport. Pat has been a volunteer since the beginning of NOLA Gigi’s Playhouse loves everything about Gigi’s programs and
working with the young adults who gain so much from the classes and just have fun.

Pat and her husband, Ken, love to travel and are busy keeping up with Craig and his many activities. The family has a four-legged member, Beignet. If you keep up with Pat on FB, you have seen the many pics of Beignet. Pat says her rewards for working with non-profits and volunteering are immeasurable when she sees the progress the participants make, the fun they are just being themselves, and the smiles on their faces. Priceless.

Paula LaCour - Treasurer

I am the proud mother of two amazing daughters who have inspired me to look beyond the necessities of life and seek to find what is fulfilling in one’s life.  For the last 25 years I have been actively involved with DSAGNO up to my current position as Treasurer.  I have held most positions in the organization throughout the years and have been a member of the Buddy Walk committee back to our inaugural walk in 2002.

As a 2001 graduate of Partners in Policymaking, my eyes were opened to all the possibilities that one could accomplish in the Down syndrome and Disability community.  Since then, I have advocated in Washington, DC, numerous times, meeting with our elected officials and/or their staff on behalf of legislation affecting those with disabilities.  In 2011, my entire family had the opportunity to participate in Buddy Walk on Washington. That trip was one of our most rewarding as we could advocate as a family.  In addition, I have met with education officials advocating for further inclusive education as a direct benefit to our children.  I have also met with our local and state officials, BESE members, and School Board members.  I was a member of Jefferson Parish’s Special Education Advisory Council for 13 years. 

We are regulars at the annual NDSC conferences where we all participate; Megan started with the Brothers and Sisters, now siblings, in 2008 and was the leader for her last two years.  Hannah has participated in the Youth and Adult conference for the last ten years.   She has presented and was most recently elected to the NDSC board by her peers as a Self Advocate. 

Most recently, I have been on the board and a certified coach for JoJo’s Hope, an aquatic program for individuals with disabilities.  

In 2012, I was appointed to the board of Jefferson Parish Human Service Authority (JPHSA), an organization that has guided me throughout the years and provides an invaluable service to the disability community in Jefferson Parish.  I served on this board for 6 years.

Aside from my volunteer work within the Down syndrome and disability community, I have worked as a Controller and CFO in the manufacturing industry.  As I wind down in my career, I am currently employed with a local CPA firm. 

To fill in the cracks, I enjoy photography, travel, and spending time with my expanding family, including my first granddaughter.

Definitely, my rewards are not as an individual but as a family enjoying giving back to the Down syndrome community all the blessings that have been bestowed upon us. 

 

Julia DiRe

Julia DiRe was born and raised in New Orleans, LA.

 She is 19 and in the Exploration Academy program at St. Michael School. She loves her job working in the kitchen at the New Orleans Superdome. She wants to go to college in 2025, and she also wants to be a film producer and to live independently. She likes to cook, write, and play the flute. She has played the flute for six years. She is on the DSAGNO board as a Self-advocacte to help others learn about DSAGNO and help it grow.

Mallory Riley

Mallory Riley was born and raised in New Orleans and is the mother of three beautiful children – Logan, Leighton, and Benny who has Down syndrome. They enjoy going to DSAGNO functions, especially the Buddy Walk. In her free time, she enjoys reading, hanging with family and friends, and advocating for Down syndrome awareness. She loves meeting and supporting new families who receive a Down syndrome diagnosis. 

Raquel Castaneda - Operations Coordinator

Raquel is the new Operations Coordinator at DSAGNO and is also a Client Care Manager at Magnolia Community Services. More importantly, she is the older sister of a young man with Down syndrome, Joel. Joel has shaped her path in life in dedicating it to helping people with disabilities and their families in anyway she can. She comes from a first generation immigrant family from El Salvador and a NOLA native. She worked as a Training and Information Specialist at Families Helping Families of GNO while in college, graduated from UNO in 2016 and has since worked in the disability field.